Parents of children with disabilities, if you had the child that you "dream of," whatever child you are searching for or trying to pull out of his shell or cure or "get back". If you had that child up until this point, but suddenly that child was involved in an accident and recovered to be the child you know now, the child with all of his challenges, quirks, blessings, disabilities, health issues, etc.
If there was no idea of a "cure" or a "preventable cause" what would you do differently?
It took me six years to get here, but I would change nothing. I would still struggle with when to intervene and when not to. I would still struggle with when to accommodate and modify and when to push just a little harder. I would still struggle with the unclear, unpredictable future. As I do now, I would spend energy on helping and adapting and less on "fixing." I'm sure I would play the "accident" in my head over and over again and wonder how I could prevent it, and then realize that I can't go back and my energy is best used elsewhere. These are things I had to learn through experience. I don't know what my answer to this question would've been years ago? Maybe I would be overwhelmed with pity and shame, the things I so despise now?
How about you?